For a while now, I have been wanting to see a new rheumatologist. Not that mine wasn’t good. He was much older and no offense to all you men but he was your typical man. A tad insensitive, thought he knew everything and only had time for me at his convenience. What has happened to doctors? Honestly, I mean I know a lot has happened with health care but don’t kids become doctors when they grow up because they dream of it? What has changed?
A few months back several of my nurse friends informed me how bad it was to be taking a steroid everyday. I have been taking prednisone every day, once a day for 8 months now.I can tell a difference in me too. I am a little muddy and I have been getting infections like crazy ever since starting the medicine. Your body becomes easily dependent on steroids and I tried going off of them by myself. It didn’t work, by the fourth day I was hurting from head to toe. A good friend told me abut a rheumatologist she loved. She had worked in the same hospital as her for a while and said she was very caring and sweet. Well, that would be a nice change!!
I had my first appointment with her 2 weeks ago! She sat there and talked to me. I asked her questions, she asked me questions and guess what? After 45 minutes of telling her my symptoms and what I had been going through, she thinks it is psoriatic arthritis!! That’s right!! The confusing part, I my blood does show lupus but it doesn’t mean its not fully inflamed yet. It can birth anywhere between the ages of 28-48. She also said I can have it in my blood and it never fully develop! That’s just nuts. Or something like that. I don’t remember what all she said because I was too happy about hearing good news FOR ONCE!! I feel like we have had a hurricane of bad news lately.
They did some baselines and were going to check to make sure but the fact I have psoriasis (which showed up shortly after Maddie was born) and hurt so bad, plus my dad has psoriatic arthritis, it just made sense. She started me on Humira that day and gave me my first shot while I was in the doctor office. I went ahead and got my flu shot and a steroid shot to help m,y body out a little bit at that point. Ive been very tired, achy and its just from all of the stress so she helped me on that one. Well, that was the last day I have had a steroid!! It has been 2 weeks from today and my body is coping really well without it! I couldn’t be more pleased about everything!
My Humira came in last Thursday and I waited until Sunday night to start my first official dose. I had to give myself two shots in the stomach. Its not easy but Ill do anything to stop hurting just a little bit. I’m excited to be able to play with my babies again and not hurt, to sit down at the end of the day or get out of bed in the morning without screaming. Its going to be awesome!
Lets just keep our fingers crossed it is not lupus. I did recently find out it is in my family history so I could very well have it, but for right now I will take psoriatic arthritis.. if I have to have anything.